Jeans and Jewels for a good cause

Shopping event benefits Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation is hosting a Jeans and Jewels open house event at their new Carmel Valley location on Feb. 7. From 10 a.m. to 2 p.m., the public is invited to shop jewelry and designer jeans at wholesale prices and learn more about the foundation and volunteer opportunities.

Jeans up for grabs include True Religion, Citizens of Humanity, 7 For All Mankind, Rock and Republic, Ed Hardy and more.

The foundation recently moved from Scripps Ranch to their Sorrento Valley Road location to be closer to the communities they serve. As many as 2,000 children in San Diego have CF and the bulk of the foundation’s families live in the Carmel Valley and Solana Beach areas, Executive Director Maria Olson said.

Cystic Fibrosis, the most lethal genetic disease for children, strikes the lungs and respiratory system, making it very difficult to breathe. Olson likened it to breathing every day through the tiny opening of a straw.

Children with CF often have to take up to 40 enzyme pills a day and do “vest” treatments to help loosen up mucus in their lungs. Children with the disease have a life expectancy of 37 years, Olson said.

The Glovers, a local family, have a 7-year-old son who was diagnosed as a
5-year-old. Usually the diagnosis comes at birth.

“Even in the healthiest of times, Dayne spends hours dealing with disease everyday,” father Broc Glover said. “There is a complete sense of uneasiness knowing that Dayne’s health can turn at a moment’s notice.”

Cure in sight
There is no government funding for CF and private donations help support research for the cure – the research is done locally at Vertex Pharmacueticals in Sorrento Valley.

“They are working on two drugs that could significantly change the lives of those living with CF,” Olson said. She said she joined the foundation a year ago because she believes the cure is in sight and she wants to be a part of it.

The foundation raises money through multiple events throughout the year, such as wine tastings, golf tournaments and walks. The CF Great Strides Walk is set for the second time this year in Carmel Valley on May 17.

The foundation and Glover are also hosting the Breathe Easy Ride, a motorcycle ride in Old Town Temecula on March 29.

“In these difficult economic times we cannot be discouraged by the negative but most continue to build hope for those who can not wait,” Glover said.

For more information visit www.cff.org/chapters/ sandiego. The office is located at 10455 Sorrento Valley Road, suite 103.

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Posted by ziggycute1 on Jan 29, 2009. Filed under Archives. You can follow any responses to this entry through the RSS 2.0. You can leave a response or trackback to this entry

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